Comprising four workshops, this program dedicated to the ketogenic diet aims to help participants take ownership of its principles and develop a better understanding in order to integrate it into their daily lives.
Each workshop provides an opportunity to explore different aspects of the condition, offering detailed information, practical advice, and a space to share experiences. Our goal is to support patients and caregivers throughout their journey by providing them with the tools they need to better live with the disease.
The workshops are led by a multidisciplinary team including dietitians, a social worker, psychologists, physicians, nurses, and a genetic counselor.
Contact usThe 4 Workshops: My Ketogenic Diet in Daily Life
Workshop 1
What is a mitochondrial disease / Glut1 deficiency syndrome?
- Naming and understanding your condition
- Explaining the basic pathophysiology
- Understanding the role of the ketogenic diet
- Communicating about your condition with others
Workshop 2
The ketogenic diet in practice
- Understanding foods, nutrients, and energy needs (particularly fats)
- The ketogenic ratio
- Adapting to real-life daily situations
Workshop 3
Perspectives
- Expressing your feelings
- Speaking within a group
- Identifying emotions
Workshop 4
Your rights and support
- Identifying and accessing key contacts within the care team
- Understanding the role of support documents
- Learning about relevant institutions and support services
- Completing administrative forms